Pediatric CranioSacral Therapy for Arthrogryposis
Arthrogryposis (AMC) is a rare disorder resulting in multiple stiff and contracted joints, muscle weakness and decreased flexibility.
Bash's Story
Bash Hagelin is a pioneer in healing and recovery from the rare genetic condition Arthrogryposis Multiplex Congenita (AMC), which causes stiff joints and weak muscles. When he was born, doctors told his parents he may never be able to walk, feed himself or function independently.
The cornerstone of his recovery has been CranioSacral Therapy. With the support of friends and donors, Bash has received over 200 hours of intensive therapy sessions since he was 3 months old.
At 6 months old, Bash's arms were in serial casting. His right foot was clubbed, which later healed naturally with the help of CranioSacral Therapy. When he was 2 years old, each arm grew an inch after an 8-hour therapy session, and he could bring his arms to center for the first time.
The treatment has also proven extremely effective for the reduction of post-surgery inflammation, pain, and recovery time. The healing changes with CST have and continue to be dramatic, lasting, and completely pain-free for Bash. Now at age five he is a champion of hope, overcoming the odds and dancing, running and playing to his own beat every day.
When Bash's dad, Nick Hagelin, appeared on NBC's The Voice in 2016, Pharrell Williams invited Bash out on stage, and he instantly became a beacon of hope for millions of people with special needs and their families. With this national attention came a flood of emails, messages and calls asking how Bash was able to break through the barriers the medical world had set for him.
In fall 2016, supporters came together to help Bash and his friends Sofia, age 2, and Josie, age 8 months. Both Sofia and Josie were born with AMC and face the same challenges Bash did, working hard every day to gain strength and mobility. Neither girl is able to stand, due to contractures in their knees, and both face a series of surgeries on their upper and lower bodies to gain flexibility and alignment. Just as Bash was, the girls were born with stiff, straight elbows and delayed development for walking and most motor skills.
All funds raised go toward CranioSacral Therapy for kids with AMC. CranioSacral Therapy, in combination with traditional medical treatments, has allowed Bash to soar beyond the early and life-encompassing challenges of mobility and feeding that Sofia and Josie now face. Bash started receiving CranioSacral Therapy at 3 months old, and we're excited to give these girls the same healing advantage.
Please share Bash's inspirational story of hope, and give what you can.
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